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Sick & Tired

16 Apr
Written By

Sick of multiple sclerosis

I know I have written posts about this in the past but right now it is something that is bothering me again. I am so sick and tired of Multiple Sclerosis right now because I am tired of feeling like crap. Everytime I go to the doctors they are switching up medications to try and make me feel better but nothing ever works. I am just tired of everything that has to do with Multiple Sclerosis and just not feeling well.

I know my situation could always be worse which is why I don’t talk much about how I am feeling but I have reached a point where I need to write about how I feel so that I can at least get it out and off of my chest. I also know that in the world of MS I have been relatively lucky as far as the disease progression goes but like I said before I am just sick of the disease.

I am sick and tired of being sick and tired. I know there really isn’t anything people can do about this at this point but I still wanted to write this because I don’t know that I have ever read a blog where someone with MS was totally honest about how much the disease sucks. I know this will pass and I will get back to the point where the things just roll off of my back but right now I just want to bitch about it. I also want to let others know that it is okay to be pissed off about what the disease does to us.

I am also tired of people thinking I am lazy because after I get off work the only thing I want to do is go home and go to bed. I wish there was someway for me to explain to others how tired I get going to work everyday. I wish I could find something to give me more energy but as it stands everything I have tried just makes things worse. I know if I could sleep I wouldn’t be as tired but like usual my health insurance company sucks and they won’t fill the one medication that does help me sleep and I can’t afford the medication without it being covered.

Anyway I am just bitchy and sick and this is what happens when I feel like this for months on end. How are things going for you guys right now????

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Mulitple Sclerosis Update

12 Dec
Written By

Mulitple Sclerosis UpdateIt has been quite awhile since I have written and update about Multiple Sclerosis and what has been going with that. I had an MRI at the end of August and it showed that I am still 100% stable which is amazing for me. The MS has always been very active in me so that fact that I have been stable for about 4 years or so now is huge for me. I know it has everything to do with the Tysabri and that makes it all worth it for me.

While I was at my doctors appointment she asked me is I wanted to get tested for the JC virus, which for those people who don’t know it is what cause people on Tysabri to get PML. I told her no because I won’t stop taking Tysabri so I really don’t want to worry about it if I do have the JC virus. She did tell me that if and when I do have another relapse I will have to get the test done to rule out that I haven’t developed PML. My chances of developing it now that I have been on it for about 4 years is really low so I am not worrying about it all.

Other than that there hasn’t been any changes. I still have ups and downs when it comes to how I feel and things like that but that is pretty normal. So there isn’t much else I can say. I am stable and doing pretty well.

If you have any questions please let me know!